New CML Clinical Trials Open

Posted by rob on August 7, 2004 under Uncategorized | Be the First to Comment

1) A Phase II, Multicenter Study of Decitabine (5-AZA-2′ Deoxycytidine) in Myelogenous Leukemia Chronic Phase Refractory to Imatinib Mesylate (STI 571). This study is being conducted in:
    – Duarte, CA (http://www.centerwatch.com/patient/studies/stu61666.html)

2) A Phase II, Multicentered Study of Decitabine (5-Aza-2′-Deoxycytidine) in Chronic Myelogenous Leukemia Accelerated Phase Refractory to Imatinib Mesylate (STI 571). This study is being conducted in:
    – Duarte, CA (http://www.centerwatch.com/patient/studies/stu61667.html)

3) Filgrastim-Mobilized Peripheral Blood Stem Cells for Primary Allogeneic Transplantation with Unrelated Donors. This study is being conducted in:
    – Duarte, CA (http://www.centerwatch.com/patient/studies/stu61668.html)

4) Fusion Protein Therapy of Imatinib-Resistant Myeloid Blast Crisis Chronic Myeloid Leukemia (CML) with DT388IL3 (IND# 11314): a Phase I/II Clinical Trial (BG04-159). This study is being conducted in:
    – Winston-Salem, NC (http://www.centerwatch.com/patient/studies/stu62168.html)

5) Fusion Protein Therapy of Relapsed or Refractory Acute Myeloid Leukemia (AML) with DT388IL3 (IND# 11314): a Phase I/II Clinical Trial (BG04-296). This study is being conducted in:
    – Winston-Salem, NC (http://www.centerwatch.com/patient/studies/stu62167.html)

Melinda Kerner (1961 – 2004)

Posted by rob on under Uncategorized | Be the First to Comment

I wanted to pass along that Melinda Kerner passed away from complications
from her BMT. Some of you may want to leave condolences for her family on
her CaringBridge site.
 
http://www.caringbridge.org/ca/kerner/

Changes Coming To Meetup – Local Organizers Will Be Needed

Posted by rob on under Uncategorized | Be the First to Comment

CML Meetup
http://cml.meetup.com
 
I wanted to also mention the changes that are coming to CML Meetup http://cml.meetup.com in mid-August that will greatly expand the opportunities for participation to many more people. I will briefly mention some of those:
 
1.  CML Meetup will be changing over to a zip code system so any community will be eligible for a local Meetup. This will greatly expand the number of towns and cities and it will not matter if you are in a town of 100 or 5 million you will be able to schedule a Meetup. The same will be done based on the postal code system in other countries. There will be no limit on the geographic areas that Meetups can be held.
 
2.  Locations will no longer be limited to those that are listed in the system. Any type of new location can be added including meetings in private homes and even outdoor locations such as parks. 
 
3.  The date and time for monthly Meetups will be flexible. If a local CML group wants to hold their meeting on a different date and time they will be able to easily do so on the new system. Meetings can also be held more than once a month if desired. The entire structure of how to do the local Meetups will be extremely flexible
 
4.  Each active CML Meetup group will have a designated local organizer. The organizer will be able to change the date and time of the meeting, the location, etc. This will be a really good opportunity for those who want to become more involved. This will be especially good for those in areas where the CML Meetups have been too far to travel. Since local Meetups will now be possible anyone in any community in the U.S. and other countries can become the local organizer and take charge and get the CML Meetup launched in their community without being limitations. For example if CML patients who go to M.D. Anderson or OHSU or UCLA want to have a CML Meetup just for patients who are treated there they can organize their own Meetup and find a location within the hospital or nearby where they can meet and set a time convenient to all.    
 
These changes and others will allow the CML Meetup system to cover a much greater geographic area than it has in the past. When the new system launches in mid August I hope many of you will consider becoming a local CML organizer to help this get started in your community. No matter where you are located you will be able to set up a local CML Meetup. The CML Meetup system has the potential to reach many of the thousands of CML patients all over the world who currently do not have any access to the information, resources, and support that found through this group. If we can get enough participation with people who will become local organizers the CML Meetup system will eventually be able to reach in one way or another the majority of CML patients all over the world no matter where they are located.
 
Since this group started in 1998 with only a handful of people, we have seen the tremendous progress that has been made with Gleevec and with other new drugs that are in clinical trials and in the pipeline to come. The more organized and active this group and the CML Meetup becomes the more that can be accomplished in the future.     
 
Rob
 
CML Support Group
http://groups.yahoo.com/group/cml
CML Support News
http://cmlsupport.blogspot.com
CML Meetup
http://cml.meetup.com  
 

Pic Of The Day

Posted by rob on under Uncategorized | Be the First to Comment

The sun sets behind the Olympic Stadium in Athens eight priot to the opening of the Summer Olympics.