Cancer patients find relief in specialized massage

Posted by rob on January 22, 2006 under Uncategorized | Be the First to Comment

Beverly Wooley weathered a double mastectomy, 29 weeks of chemotherapy and 33 radiation treatments after being diagnosed with breast cancer in August 2004.

But it was the lymphedema — a swelling of the soft tissues after removal of lymph nodes — that really got her down.

“After you’ve been through so much, you just want to get better,” she said. “It was a constant, nagging area.”

Wooley’s oncologist, Dr. Jeanne Anderson, encouraged her to research alternative therapies but also cautioned her.

“She had seen and heard of people who had received massage from someone who didn’t really understand the physiology and anatomy involved with lymphedema, and they had made it worse,” Wooley said.

Wooley’s research and word of mouth led her to Jamie Elswick, a local specialist in oncology massage. Wooley points to her weekly appointments, begun during radiation treatments, as the single thing that made her feel better.

Elswick addressed the pain in Wooley’s left arm through lymphatic drainage massage and helped increase her range of motion through her work on scar tissue.

“All that has played into an overall healthier mental outlook” during recovery, Wooley said.

Elswick, the owner of Northern Raven Massage, was a licensed massage therapist for years before she trained to work with complicated cancer cases through the Scherer Institute of Natural Healing in Santa Fe, N.M. She has since completed the institute’s nationally certified course for oncology massage teachers.

She is working with her mentor at Scherer, Gayle MacDonald, a pioneer in oncology massage in this country, to research the effects of massage on scar tissue for the revised edition of MacDonald’s book “Medicine Hands.”

CHANGING TREND

Massage as a means to aid healing fell out of favor in the United States after powerful painkillers were developed in the 1940s. That trend has been changing over the past decade or so. Alternative therapies are undergoing a revival, with some large hospitals employing licensed massage therapists on staff.

Historically, oncologists advised their patients to avoid massage entirely, fearing it could cause cancer cells to metastasize or travel to other areas and begin new tumors.

“There are still massage schools that teach students not to touch patients going through cancer treatment,” Elswick said. “But research in molecular biology has improved our understanding about how cancer begins and spreads through the body.” Rather than ban all massage for cancer patients, the current thinking is to avoid deep-tissue massage and train therapists to deal with the many variables presented by cancer patients.

In a 2003 survey of 219 hospitals that offer massage therapy, the American Hospital Association found that 17 percent provided the therapy for cancer patients. Numerous large-scale studies on the benefits of massage are being conducted at U.S. hospitals.

Small, randomized studies by the Touch Research Institutes, University of Miami School of Medicine, have shown an increase in dopamine levels, natural killer cells and lymphocytes in women with breast cancer who received 30-minute sessions three times a week for five weeks.

Other small-scale studies on people with all sorts of types of cancer indicate patients receiving massage may experience a decrease in pain perception, nausea, fatigue, anxiety and depression.

ALASKA INROADS

Elswick is on the cutting edge of this trend in Alaska, with her efforts to bring alternative therapies to cancer patients. In addition to teaching oncology massage on the West Coast and in Scotland, she leads a class at University of Alaska Anchorage as an adjunct teacher. About 40 local licensed massage therapists have completed the course, and Elswick said eight local therapists now offer oncology massage through their practices. Two of her former students are training at Sherer, she said.

At Providence Alaska Medical Center, Elswick and her team of students volunteer free comfort massage to oncology patients. Elswick instituted the program using protocols from Oregon Health Sciences University, where she received her hospital training.

“I saw there was such a need here that I came back and set up the volunteer staff at Providence,” she said.

Elswick’s team has been well-received, said Cheryl Howdyshell, volunteer services director for the hospital. An inpatient at Providence must have doctor’s orders to allow the service.

“It’s very technical in terms of what kind of massage they do and how they do it for patients in the oncology area,” Howdyshell said. Much of the feedback has been requests for more volunteers.

“It’s been exciting to be involved with Jamie and this program,” Howdyshell said. “She’s gone way out there to try to make something happen for folks. I think this is an area that’s really going to grow in the future.”

CHOOSING A THERAPIST

Surgery, chemotherapy and radiation save lives, but their wide-ranging side effects on cancer patients can seem intolerable.

Treatment lowers blood counts and immune function and can have a negative impact on digestion and a host of other bodily functions. Pain, fatigue, nausea, anxiety and depression can become an everyday part of life. Many suffer with long-term damage to the lymphatic system and scarring from surgery and radiation.

These and other factors specific to the type of cancer and necessary treatment make it important for cancer patients to choose therapists trained in oncology massage. They can assess their clients’ medical situation and can navigate surgery sites and infusion ports that allow delivery of powerful cancer-killing drugs. They understand the need to keep the massage area sterile to protect patients, whose white blood cell counts can be lowered by treatment, leaving them vulnerable to infection.

Mary Bakic, 66, has been a client of Elswick’s through four bouts of cancer over a decade, the most recent a second instance of breast cancer. Before her first diagnosis, with kidney cancer in 1995, she sought massage as a stress reliever. She credits massage during cancer treatment for preventing lymphedema, helping her sleep, and reducing fatigue and pain.

“Some of the medications cause bone pain, and massage definitely helps,” Bakic said. “It relieves stress; if your body is stressed, everything’s more painful.”

Dr. Tammy Pickett, a family practitioner at Alaska Native Medical Center, has been on both sides of the fence.

When she was pregnant with her second child, she was diagnosed with chronic myelogenous leukemia, a blood cancer, in February 2002. She began seeing Elswick about six months before receiving a bone marrow transplant at Fred Hutchinson Cancer Research Center in Seattle.

“When you’re diagnosed with something as serious and life-changing as cancer, you want there to be a miracle cure,” she said. “But there was no magic bullet.”

Weekly massage helped her relax and sleep better, and it reduced some of the puffiness she experienced from chemotherapy treatments.

“I knew massage was not harmful,” she said. “I felt it was one of the things I could do that was really positive for my body.”

Pickett, who sometimes encounters cancer patients through her practice, is supportive of those who seek alternative therapies to support their treatment. But she, too, cautions them.

“I think it should be done by someone who is experienced,” she said, “so they know what to look for and what to be concerned about.”


Daily News reporter Rose Cox can be reached at rcox@adn.com.

adn.com | alaska : Cancer patients find relief in specialized massage

Charlotte Observer | 01/22/2006 | Leukemia’s pedaling foe

Posted by rob on under Uncategorized | Be the First to Comment

GREG LACOUR
glacour@charlotteobserver.com

Judith Teele doesn’t want your sympathy.

She doesn’t want to see what she calls “this hang-dog look” that crosses people’s faces when they learn that her son, Hank, her first child, died of acute lymphoblasticleukemia at age 2 in 1972.

But she’s willing to tell people the story. At 61, the Morganton resident has learned that revealing personal matters — something a lady of her generation and upbringing just doesn’t do — can lead to something good.

So here it is: Her son’s death led her to raise money for leukemia research. Her love of cycling has helped keep her healthy. In March, Teele will begin a two-month, 3,098-mile bicycle trek across the country for a Boston cancer institute with a goal of curing leukemia.

She’s seeking donations, all of which she plans to send to the Dana-Farber Cancer Institute. So she can’t afford to be shy about what she’s doing and why.

“It’s not that I didn’t want to talk about my son’s death but that the world I grew up in told me that you just don’t talk about your problems in public, you just don’t go parading your problems in the public arena. I still feel a little squeamish about doing it,” Teele said.

“People just get this hang-dog look on their faces. It is tragic, but it’s not altogether tragic. Life goes on.”

Hank appeared to be a healthy boy after his birth in 1969. But one day, near Labor Day 1971, he fell and developed a bruise that wouldn’t go away. Teele was puzzled, then alarmed: The fall hadn’t been that bad, but the bruise was. The doctors diagnosed leukemia. The disease worked quickly. Hank died seven months later, on March 29, 1972.

Teele overcame her grief and had two more children soon after with her husband, Morganton attorney Dockery Teele Jr. — Walker, now 33, who lives in Durham, and a daughter, Nan, 32, who lives in Boston. Teele developed her own career as a free-lance public relations consultant and, when she could, raised money locally for leukemia research organizations.

She stayed active, too, running until her early 40s, when, she said, “everything hurt.” So she switched to cycling. Eventually, she lit upon the idea of combining her two interests.

The idea came in 2001, when she and five other women undertook a long bike race to benefit AIDS research. She loved it so much, she began looking for an organization she could raise money for through cycling. Then, last year, she found it through a longtime friend.

Teele had known Mary Helen Jones for decades, since the two women lived in Morganton, where their children attended school together. In 1993, Jones was diagnosed with chronic myelogenous leukemia, a rare cancer of the bone marrow.

Her situation was dire until she sought treatment at Dana-Farber, which was pioneering the use of an experimental drug called Gleevec. Her condition improved. Jones, who now lives in Charlotte, travels to Boston twice a year for checkups and more medicine, and she knew her friend was looking for a more personal connection to her fundraising idea.

This was it.

“I think very few women her age could do what she’s doing,” Jones said. “I think it’s a fabulous undertaking. It’s the kind of thing people wish or hope they could do but never do it. Judy is the kind of person who’ll do it.”

It won’t be easy. The trip, from San Diego to St. Augustine, Fla., will take 58 days, including only eight days for rest. It’s being organized by WomanTours, a cycling organization that encourages participants in their tours to ride for a cause. Teele will take the trip with 24 other women, each with her own organization to support.

“I’m somewhat amazed that she has the energy to put into it,” Dockery Teele Jr. said. “I’m impressed that she has what it takes to undertake something like this, as well as the reasons she’s doing it.”

If the experience is anything like her last fundraising bike trip, she said, the effort will be worth it.

“All of us who did the ride were inspired and touched,” Teele said. “And it made an adventure-based experience that much more meaningful, because we were doing something not just for ourselves but for others.”

Want to Donate?

To make a tax-deductible donation to support Judith Teele’s ride for leukemia research, you can send money to The EmbraceLife Fund, Grace Episcopal Church, Morganton 28655. The fund will provide a tax receipt.


Greg Lacour: (828) 324-0055

Charlotte Observer | 01/22/2006 | Leukemia’s pedaling foe

AMN107 And BMS354825 Groups Are Now Open On Google

Posted by rob on under Uncategorized | Be the First to Comment

The AMN107 And BMS354825 groups are now open again on Google.
The 2 groups are for those participating and interested in those important
clinical trials.

You can subscribe to our 3 Google groups as follows:

AMN107-subscribe@googlegroups.com

BMS354825-subscribe@googlegroups.com

CMLHOPE-subscribe@googlegroups.com

Rob